Showing posts from March, 2018

Support Groups

I see so many fellow fibro-warriors on Facebook and Twitter extolling the virtues of 'meet-ups' - where they meet other sufferers, local to them, to exchange information and just have a natter! ​Social interaction is of vital importance when you're struggling with this awful condition. Even if you're not alone at home it does you good to get away from those who see you on a daily basis and mix with others who know what you're going through - not necessarily to moan or complain - although that can happen - but just to talk to someone in a similar position about life. ​I see these Facebook groups - I'm even a member of a few of them - and how the members are meeting up for a social event on a regular basis, and I get a pang of jealousy. ​I've long been considering setting up such a group for my area - Tees Valley/North Yorkshire (specifically: Middlesbrough, Stockton, Darlington, Hartlepool and Redcar) but I haven't got a clue how to go about it. I suppose

Pain - How Do You Manage Yours?

Our 'brother' site FibroMen is conducting a survey on pain treatment and management and they'd love to hear your views: ​What works for you, what doesn't work and what made you worse? I've had years and years of different medications and treatments, a lot of them absolutely useless, a lot of them with side effects far worse than the pain they're meant to treat. Have you had a similar journey? ​To go to the survey follow this link FibroMen Pain Survey - and then come back and comment here.

Fibro & I.B.S - (A Quick Survey)

I was diagnosed with Crohn's Disease in 2007. It was (apparently) a very small patch of my lower bowel which was affected but it was sufficient for my gastroenterologist to make a positive diagnosis. However, all subsequent endoscopy investigations have revealed no further inflammation. ​My GP considers my recurrent bowel 'problems' to be associated more with I.B.S (Irritable Bowel Syndrome) than with Crohn's and even went so far as to suggest I have 'Severe and chronic IBS' - there are tests to determine levels of inflammation within the body and mine usually come back as low, so what else could it be if not IBS? Irritable isn't inflammation and Crohn's is caused through the latter. ​I take Buscopan for my IBS. It has little effect on the symptoms. What is effective is Loperamide - used to 'thicken things up' (Sorry if that's too much information!) But I worry that using Loperamide (sometimes branded as Immodium) regularly will somehow mean